MyPALC editor

NMQF Sickle Cell Disease Working Group to Introduce New Data Mapping Platform

NMQF will introduce the SCD Index at the SCDAA National Convention, Friday Oct 11th at 4:15 p.m.   The index is the first of its kind to map aggregated SCD data in the US by population statistics as well as health cost and utilization.  The index is searchable by demographics and geographies with other capabilities to be shared.   We welcome those interested in advancing knowledge and quality of care.  To learn more contact us at


SCDAA 47th Annual National Convention

Quite a Picture !…Disparities in Clinical Trials…Why Not More Noise About This?

NMQF Sickle Cell Disease working group to present at the SCDAA Annual Meeting in Baltimore on Oct 11, 4:15 p.m.   The presentation will introduce the first SCD Index mapping U.S. population statistics, as well as health cost and utilization related to SCD….searchable by demographics and geographies.

At the recent AACR meeting in San Francisco NMQF Cancer Working Group members and stakeholders presented an interesting poster about the location of clinical trials and prevalence of lung cancer among minorities. The visual says a lot.   lungcancerposteraacrSEPT 2019

Index partners build knowledge and solutions to improve clinical trials: